For advocacy day on Capitol Hill, wouldn't it be interesting for those many people with ALS to have some nice big badges with their "I was fine" dates. That would get the attention of those healthy young staff members who listen to our case for increased research funding! It might make them squirm, and that's good.
Most people with ALS were golfing or sailing or shooting hoops or playing catch with the kids not so long ago. ALS strikes with a nasty punch, and vibrant people end up in wheelchairs or with android voices speaking for them in a matter of a few months.
Maybe that "I was fine" date would make some interesting impressions on some vibrant people who can make a difference in research funding.
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