Wednesday, April 22, 2009

What is this thing called March of Faces?

I bet many folks, even those in the ALS community, may not have heard of the ALS March of Faces. Conceived by a person with ALS who has subsequently lost his battle with the disease, and his girl friend, March of Faces consists of banners with the faces of those either living with or who have died from ALS.

ALS is also know as Lou Gehrig's disease affects a relatively small number of patients in the U. S. It is estimated that around 30,000 are living with the disease at any one time. The number remains relatively constant becasue, regretably, the number of new cases approximately is the same as the number dying. It has been dubbed and "orphan" disease and one that has limited profit potention for the pharmaceutical companies.

March of Faces literally gives faces to those with ALS, a humanity that is often lost in just words. Hundreds a banners, each with twenty faces, have been produced throughout the U. S. and Canada.

So now you know about ALS March of Faces. Why not help get the word out and maybe see one at the next ALS walk in your area?


Anonymous said...

Needs a link

Also, everyone with ALS should aspire to be pictured. Everyone who has lost a loved one to ALS should aspire to have the loved one pictured.

Snow White of ALS said...

I wonder how we can get ahold one of these for personal use???? Like to display at Events for ALS or even Advocacy Day in DC?