Thursday, February 7, 2008

Breaking News!

Breaking News! That TV tactic that plays to our fears and has spread now to the science field, playing on our ALS hopes. In the early 90's we had breaking news of a drug called Myotrophin. This new hope would turn victim to European clinical trials and the FDA freezing their lottery program. Leon Charash, head of the MDA's medical advisory committee, said the Myotrophin injections produced a skin inflammation that might alert patients and bias the trial.

The latest is the Lithium study coming from Italy and is laying claim that it slows ALS progression. To date one Internet forum has had over 300 comments on the subject, every possible angle being examined by people coping with ALS.

Mixing Lithium with Rilutek? One claim indicates that this combination can increase the effectiveness of Rilutek. Could this confirm that Rilutek has never lived up to being the only FDA approved drug slowing progression? Lithium salts seems to be very exciting but what are the guide lines right now? How do you take it, when, how much and what are the side effects. The current results are interesting but it has to go further to larger trials and that equals more costly time.

Breaking News, this study has been reported to the National Academy of Sciences. The NAS was signed into being by President Lincoln on March 3, 1863. After years of modifications it is now known as the National Academies. Take a look at this site and you will understand that Lithium may be the next needle lost in the hay.

Patients coping with ALS deserve a lot more than just Breaking News. ALS needs one research group expediting this type of discovery and never let it rest.

1 comment:

ALS Grumpy said...

Oh, you are attempting to ruin my grumpiness with this report of a clinical trial on actual human beings that has promising results.

My gosh, could it be that our friends with this new website that outlines a clinical trial approach via the internet will allow me to join the exclusive ranks of trial subjects like the lab rats, mice, worms, fruit flies and zebra fish?

Even prominent researchers like Packard Institutes, Dr. Jeff Rothstein, caution attempting ALS patients to try the promising lithium therapy under the supervision of a physician.

More conservative spokespersons would have us hold off trying a therapy that has shown remarkable promise using a well known and used pharmaceutical.

The internet and some very capable and scientifically competent patients with ALS may have broken the hold on those who would kill us with their conservatism.