Friday, August 13, 2010

Collaborate, Collaborate, Dance to the Music!

"Rare Sharing Of Data Leads To Progress On Alzheimer's"
The New York Times
August 13, 2010

“It’s not science the way most of us have practiced it in our careers. But we all realized that we would never get biomarkers unless all of us parked our egos and intellectual-property noses outside the door and agreed that all of our data would be public immediately.”

Sleepy heard an interesting suggestion this morning. Shall we advocate that all grantmaking organizations (including the DOD, NIH, ALSA and the MDA) investing in ALS research make it a requirement that detailed and complete data will be made public quarterly? No sharing, no grant$.

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