Thursday, October 8, 2009

At The Risk Of Being Maudlin, This Is The Reality Of ALS...

We are grateful for the information posted today regarding the late 2010 launch of the national ALS Registry.

http://tinyurl.com/ya5pofw

Patients have been encouraged to leave their email addresses so that they can be notified when they can enroll in the registry.

How many of them will be here in 14 months to receive the email?

1 comment:

Anonymous said...

Perhaps they will update those website pictures of the handsome and happy people with ALS as time marches on to a late 2010 registry launch.