Monday, July 27, 2009

ALS Registry For 250 Please, Alex

Since many of us have questions about the status of the ALS Registry that we worked hard to have passed into law, perhaps we could have a little fun and ask for information in the form of a question. Below we have enough clues for a full Jeopardy! category --
  • The news from the June meeting of investigators running the ALS Registry pilots
  • The spending to-date on the pilots
  • The next set of goals and deliverables for the pilots
  • The date for implementation of the full registry
  • The status or composition of the ALS Registry Advisory Committee

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